Palyatif Bakım Hastalarına Bakım Veren Bireylerin Bakım Yüklerinin Yaşam Kaliteleri Üzerine Etkisi

Hülya Bulut; Canan Bozkurt; Derya Demirkol Sakar

doi:10.37989/gumussagbil.1225687

Araştırma Makalesi

The Effect of Care Burdens on the Quality of Life of Palliative Care Patients Caregivers

Yıl 2023, Cilt: 12 Sayı: 3, 1086 - 1096, 26.09.2023

Hülya Bulut Canan Bozkurt Derya Demirkol Sakar

https://doi.org/10.37989/gumussagbil.1225687

Öz

The aim of this study is to examine the effects of care burdens on the quality of life of individuals who care for palliative care patients.
The study is descriptive and cross-sectional, and its sample consisted of 209 caregivers who met the inclusion criteria and cared for patients treated in a palliative care clinic of a hospital between May 2021 and October 2022. In data collection tools; “Individual Identification Form”, “Zarit Care Burden Scale” and “Caregiver Quality of Life Scale” were used. In the analysis results, p<0.05 was accepted as significant.
In line with the data obtained, the mean age of caregivers is 50.77±12.88, and ranges from 21 to 78 years. 81.3% of caregivers are women, 75.6% are married, 56% are not working in any job. The relationship between the care burden of the participants and their quality of life scores was negative and high (r= -0.772; p<0.001). According to the linear regression analysis, the power of care burden to explain the quality of life was found to be 59.4% (β = -0.772, Adjust R2= 0.594, p<0.001).
The burden of care is an important problem in physical, mental and social dimensions for caregivers and negatively affects the quality of life of the individual. In this context, the practices, training and support to be given to the caregivers of health professionals, especially nurses, especially of patients treated in palliative care, can improve the quality of life of caregivers.

Anahtar Kelimeler

Care Burden, Palliative Care, Quality of Life

Kaynakça

1. World Health Organization (2022). “Definition of Palliative Care”. Erişim adresi: http://www.who.int/cancer/palliative/definition/en/ (Erişim tarihi: 07.10.2022)
2. National Coalition for Hospice and Palliative Care. (2018). “National Consensus Project for Quality Palliative Care Clinical Practice Guidelines for Quality Palliative Care”. Erişim adresi: https://www.nationalcoalitionhpc.org/wp-content/uploads/2020/07/NCHPC-NCPGuidelines_4thED_web_FINAL.pdf (Erişim tarihi: 07.10.2022)
3. Yeşil, T, Uslusoy, E.Ç. ve Korkmaz, M. (2016). “Kronik Hastalığı Olanlara Bakim Verenlerin Bakim Yükü ve Yaşam Kalitesinin İncelenmesi”. Gümüşhane Üniversitesi Sağlık Bilimleri Dergisi, 5 (4), 54-66.
4. Oechsle, K, Goerth, K, Bokemeyer, C. and Mehnert, A. (2013). “Symptom Burden in Palliative Care Patients: Perspectives of Patients, Their Family Caregivers, and Their Attending Physicians”. Supportive Care in Cancer, 21 (7), 1955-1962. https://doi.org/10.1007/s00520-013-1747-1
5. Reigada, C, Pais-Ribeiro, J.L, Novella, A. and Gonçalves, E. (2015). “The Caregiver Role in Palliative Care: A Systematic Review of the Literature”. Health Care: Current Reviews, 3, 2. https://doi.org/10.4172/2375-4273.1000143
6. De Korte-Verhoef, M.C, Pasman, H.R.W, Schweitzer, B.P, Francke, A.L, Onwuteaka-Philipsen, B.D. and Deliens, L. (2014). “Burden for Family Carers at the End of Life; A Mixed-Method Study of the Perspectives of Family Carers and Gps”. BMC Palliative Care, 13 (1), 2-9. https://doi.org/10.1186/1472-684X-13-16
7. Kulkarni, P, Kulkarni, P, Ghooi, R, Bhatwadekar, M, Thatte, N. and Anavkar, V. (2014). “Stress Among Care Givers: The Impact of Nursing a Relative with Cancer”. Indian Journal of Palliative Care, 20 (1), 31-39. https://doi.org/10.4103/0973-1075.125554
8. Tripodoro, V, Veloso, V. and Llanos, V. (2015). “Sobrecarga Del Cuidador Principal De Pacientes En Cuidados Paliativos”. Argumentos. Revista de Critica Social, (17), 307-330.
9. Saria, M.G, Nyamathi, A, Phillips, L.R, Stanton, A.L, Evangelista, L, Kesari, S. and Maliski, S. (2017). “The Hidden Morbidity of Cancer: Burden in Caregivers of Patients with Brain Metastases”. Nursing Clinics, 52 (1), 159-178. https://doi.org/10.1016/j.cnur.2016.10.002
10. Lindstrom, B. and Koehler, L. (1991). “Youth, Disability and Quality of Life”. Pediatrician, 18 (2), 121-128.
11. Rha, S.Y, Park, Y, Song, S.K, Lee, C.E. and Lee, J. (2015). “Caregiving Burden and the Quality of Life of Family Caregivers of Cancer Patients: The Relationship and Correlates”. European Journal of Oncology Nursing, 19 (4), 376-382. https://doi.org/10.1016/j.ejon.2015.01.004
12. Zarit, S.H, Reever, K.E. and Back-Peterson, J. (1980). “Relatives of the Impaired Elderly: Correlates of Feelings of Burden”. Gerontologist, 20, 649-655.
13. İnci, F. ve Erdem, M. (2006). “Bakım Verme Yükü Ölçeği’nin Türkçe'ye Uyarlanmasi Geçerlilik ve Güvenilirliği”. Anadolu Hemşirelik ve Sağlık Bilimleri Dergisi, 11 (4), 85-95.
14. Weitzner, M.A, Jacobsen, P.B, Wagner, J.R, Friedland, J. and Cox, C, (1999). “The Caregiver Quality of Life Index-Cancer (CQOLC) Scale: Development and Validation of an Instrument to Measure Quality of Life of the Familiy Caregiver of Patients with Cancer”. Quality of Life Research, 8 (1), 55-63. https://doi.org/10.1023/A:1026407010614
15. Karabuğa, H. (2009). Kanserli Hastalara Bakım Verenlerin Yaşam Kalitesinin Değerlendirilmesi. Yüksek Lisans Tezi. Marmara Üniversitesi Sağlık Bilimleri Enstitüsü, İstanbul.
16. Budak, S. (2019). Palyatif Bakım Alan PEG (Perkütan Endoskopik Gastrostomi) ve NG (Nazogastrik)’li Hastalara Bakım Verenlerin Bakım Yükü ve Yaşam Kalitesinin İncelenmesi. Yüksek Lisans Tezi. Balıkesir Üniversitesi Sağlık Bilimleri Enstitüsü, Balıkesir.
17. Başdinç, Ş.E. (2019). Palyatif Bakımda Yatan Hasta Yakınlarının Bakım Verme Yükü ve Psikososyal Gereksinimleri. Yüksek Lisans Tezi. İstanbul Üniversitesi-Cerrahpaşa Lisansüstü Eğitim Enstitüsü, İstanbul.
18. Eğici, M, Can, M, Toprak, D, Öztürk, G, Esen, E. S, Özen, B. ve Sürekci, N. (2019). “Palyatif Bakım Merkezlerinde Tedavi Gören Hastalara Bakım Veren Bireylerin Bakım Yükleri ve Tükenmişlik Durumları”. Journal of Academic Research In Nursing, 5 (2), 123-131. https://doi.org/10.5222/jaren.2019.38247
19. Hudson, P.L, Remedios, C. and Thomas, K. (2010). “A Systematic Review of Psychosocial Interventions for Family Carers of Palliative Care Patients”. BMC Palliative Care, 9 (17), 1-6. https://doi.org/10.1186/1472-684X-9-17
20. Krug, K, Miksch, A, Klimm, F.P, Engeser, P. and Szecsenyi, J. (2016). “Correlation Between Patient Quality of Life in Palliative Care and Burden of Their Family Caregivers: A Perspective Observantional Cohort Study”. BMC Palliative Care, 15 (4), 1-8. https://doi.org/10.1186/s12904-016-0082-y
21. Limpawattana, P, Theeranut, A, Chindaprasirt, J, Sawanyawisuth, K. and Pimporm, J. (2013). “Caregivers Burden of Older Adults with Chronic Illnesses in the Community: A Cross-Sectional Study”. Journal of Community Health, 38 (1), 40-45. https://doi.org/10.1007/s10900-012-9576-6
22. Han, Y, Liu, Y, Zhang, X, Tam, W, Mao, J. and Lopez, V. (2017). “Chinese Family Caregivers of Stroke Survivors: Determinants of Caregiving Burden within the First Six Months”. Journal of Clinical Nursing, 26 (23-24), 4558-4566. https://doi.org/10.1111/jocn.13793
23. Tamayo, G.J, Broxson, A, Munsell, M. and Cohen, M.Z. (2010). “Caring for the Caregiver”. Oncology Nursing Forum, 37 (1), E50–E57. https://doi.org/10.1188/10.ONF.E50-E57
24. Van Der Eerden, M, Csikos, A, Busa, C, Hughes, S, Rodbruch, L, Menten, J, Hasselaar, J. and Groot, M. (2014). “Experiences of Patients, Family and Professional Caregivers with Integrated Palliative Care in Europe: Protocol for an International, Multicenter, Prospective, Mixed Method Study”. BMC Palliative Care, 13 (52), 1-9. https://doi.org/10.1186/1472-684X-13-52
25. Kim, H, Chong, M, Rose, K. and Kim, S. (2011). “Predictors of Caregiver Burden in Caregivers of Inviduals with Dementia”. Journal of Advanced Nursing, 68 (4), 846-855. https://doi.org/10.1111/j.1365-2648.2011.05787.x
26. Adelman, R.D, Tmanova, L.L, Delgado, D, Dion, S. and Lachs, M.S. (2014). Caregiver Burden: a Clinical Review”. The Journal of the American Medical Association, 311 (10), 1052-1060. doi:10.1001/jama.2014.304
27. Mcllfatrick, S, Doherty, L.C, Murphy, M, Dixon, L, Donnelly, P, McDonald, K. and Fitzsimons, D. (2017). ‘The Importance of Planning for the Future’: Burden and Unmet Needs of Caregivers’ in Advanced Heart Failure: A Mixed Method Study”. Journal of Palliative Medicine, 32 (4), 881-890. https://doi.org/10.1177/0269216317743958
28. Dirikkan, F, Baysan Arabacı, L. ve Mutlu, E. (2018). “The Caregiver Burden and the Psychosocial Adjustment of Caregivers of Cardiac Failure Patients”, Türk Kardiyoloji Derneği Arşivi, 46 (8), 692-701. https://doi.org/10.5543/tkda.2018.10.5543/tkda.2018.69057
29. Iconomou, G, Vagenakis, A.G. and Kalofonos, H.P. (2001). “The İnformational Needs, Satisfaction with Communication, and Psychological Status of Primary Caregivers of Cancer Patients Receiving Chemotherapy”. Supportive Care in Cancer, 9 (8), 591-596. https://doi.org/10.1007/s005200100259
30. Diehl- Schmid, J, Schmidt, E.M, Nunnemann, S, Riedl, L, Kurz, A, Förstl, H, Wagenpfeil, S. and Cramer, B. (2013). “Caregiver Burden and Needs in Frontotemporal Dementia”. Journal of Geriatric Psychiatry, 26 (4), 221-229. https://doi.org/10.1177/0891988713498467
31. Gott, M, Allen, R, Moeke-Maxwell, T, Gardiner, C. and Robinson, J. (2015). “No Matter What the Cost’: A Qualitative Study of the Financial Costs Faced by Family and Whānau Caregivers Within A Palliative Care Context”. Palliative Medicine, 29 (6), 518-528. https://doi.org/10.1177/0269216315569337
32. Ganapathy, V, Graham, G.D, Di Bonaventura, M.D, Gillard, P.J, Goren, A. and Zorowitz, R.C. (2015). “Caregiver Burden, Productivity Loss, and Indirect Costsassociated with Caring for Patients with Poststroke Spasticity”. Clinical Interventionsin Aging, 10, 1793-1802. https://doi.org/10.2147/CIA.S91123
33. Yu, Y, Hu, J, Efird, J.T. and McCoy, T.P. (2013). “Social Support, Coping Strategies and Health-Related Quality of Life Among Primary Caregivers of Stroke Survivors in China”. Journal of Clinical Nursing, 22 (15-16), 2160-2171. https://doi.org/10.1111/jocn.12251
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35. Song, J.I, Shin, D.W, Choi, J.Y, Kong, J, Baik, J.Y, Mo, H, Park, M.H, Choi, S.E, Kwak, J.H. and Kim, J.E. (2011). “Quality of Life and Mental Health in Family Caregivers of Patient with Terminal Cancer”. Support Care Cancer, 19, 1519-1526. https://doi.org/10.1007/s00520-010-0977-8
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38. Sit, J.W, Wong, T.K, Clinton, M, Li, L.S. and Fong, Y.M. (2004). “Stroke Care in The Home: The Impact of Social Support on the General Health of Family Caregivers”. Journal of Clinical Nursing, 13 (7), 816-824. https://doi.org/10.1111/j.1365-2702.2004.00943.x
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40. Hung, J.W, Huang, Y.C, Chen, J.H, Liao, L.N, Lin, C.J, Chuo, C.Y. and Chang, K.C. (2012). “Factors Associated with Strain in Informal Caregivers of Stroke Patients”. Chang Gung Medical Journal, 35 (5), 392-401.

Palyatif Bakım Hastalarına Bakım Veren Bireylerin Bakım Yüklerinin Yaşam Kaliteleri Üzerine Etkisi

Yıl 2023, Cilt: 12 Sayı: 3, 1086 - 1096, 26.09.2023

Hülya Bulut Canan Bozkurt Derya Demirkol Sakar

https://doi.org/10.37989/gumussagbil.1225687

Öz

Bu çalışmanın amacı, palyatif bakım hastalarına bakım veren bireylerin bakım yüklerinin yaşam kalitelerine etkisini incelemektir.
Araştırma tanımlayıcı ve kesitsel olup örneklemini dâhil edilme kriterlerine uyan ve Mayıs 2021-Ekim 2022 tarihleri arasında bir hastanenin palyatif bakım kliniğinde tedavi gören hastalara bakım veren 209 bakım verici oluşturmuştur. Veri toplama araçlarında; “Birey Tanılama Formu”, “Zarit Bakım Yükü Ölçeği” ve “Bakım Verici Yaşam Kalitesi Ölçeği” kullanılmıştır. Yapılan analiz sonuçlarında p<0,05 anlamlı kabul edilmiştir.
Elde edilen veriler doğrultusunda bakım veren bireylerin yaş ortalaması 50,77±12,88 olup 21-78 yaş arasında değişmektedir. Bakım vericilerin %81,3 ü kadın, %75,6’sı evli, %56’sı herhangi bir işte çalışmamaktadır. Katılımcıların bakım yükü ile yaşam kalitesi puanlarının arasındaki ilişki negatif yönde ve yüksek düzeydedir (r= -0,772; p<0,001). Yapılan doğrusal regresyon analizine göre bakım yükünün yaşam kalitesini açıklama gücü %59,4 olarak bulunmuştur (β = -0,772, Adjust R2= 0.594, p<0,001).
Bakım yükü, bakım veren bireyler için fiziksel, ruhsal ve sosyal boyutta önemli bir sorundur ve bireyin yaşam kalitesini önemli ölçüde olumsuz etkilemektedir. Bu bağlamda başta hemşireler olmak üzere sağlık profesyonellerinin özellikle palyatif bakımda tedavi gören hastaların bakım vericilerine yönelik yapılacak uygulamaların, verilecek eğitim ve desteklerin bakım vericilerin yaşam kalitesini yükseltebilir.

Anahtar Kelimeler

Palyatif Bakım, Bakım Yükü, Yaşam Kalitesi

Kaynakça

1. World Health Organization (2022). “Definition of Palliative Care”. Erişim adresi: http://www.who.int/cancer/palliative/definition/en/ (Erişim tarihi: 07.10.2022)
2. National Coalition for Hospice and Palliative Care. (2018). “National Consensus Project for Quality Palliative Care Clinical Practice Guidelines for Quality Palliative Care”. Erişim adresi: https://www.nationalcoalitionhpc.org/wp-content/uploads/2020/07/NCHPC-NCPGuidelines_4thED_web_FINAL.pdf (Erişim tarihi: 07.10.2022)
3. Yeşil, T, Uslusoy, E.Ç. ve Korkmaz, M. (2016). “Kronik Hastalığı Olanlara Bakim Verenlerin Bakim Yükü ve Yaşam Kalitesinin İncelenmesi”. Gümüşhane Üniversitesi Sağlık Bilimleri Dergisi, 5 (4), 54-66.
4. Oechsle, K, Goerth, K, Bokemeyer, C. and Mehnert, A. (2013). “Symptom Burden in Palliative Care Patients: Perspectives of Patients, Their Family Caregivers, and Their Attending Physicians”. Supportive Care in Cancer, 21 (7), 1955-1962. https://doi.org/10.1007/s00520-013-1747-1
5. Reigada, C, Pais-Ribeiro, J.L, Novella, A. and Gonçalves, E. (2015). “The Caregiver Role in Palliative Care: A Systematic Review of the Literature”. Health Care: Current Reviews, 3, 2. https://doi.org/10.4172/2375-4273.1000143
6. De Korte-Verhoef, M.C, Pasman, H.R.W, Schweitzer, B.P, Francke, A.L, Onwuteaka-Philipsen, B.D. and Deliens, L. (2014). “Burden for Family Carers at the End of Life; A Mixed-Method Study of the Perspectives of Family Carers and Gps”. BMC Palliative Care, 13 (1), 2-9. https://doi.org/10.1186/1472-684X-13-16
7. Kulkarni, P, Kulkarni, P, Ghooi, R, Bhatwadekar, M, Thatte, N. and Anavkar, V. (2014). “Stress Among Care Givers: The Impact of Nursing a Relative with Cancer”. Indian Journal of Palliative Care, 20 (1), 31-39. https://doi.org/10.4103/0973-1075.125554
8. Tripodoro, V, Veloso, V. and Llanos, V. (2015). “Sobrecarga Del Cuidador Principal De Pacientes En Cuidados Paliativos”. Argumentos. Revista de Critica Social, (17), 307-330.
9. Saria, M.G, Nyamathi, A, Phillips, L.R, Stanton, A.L, Evangelista, L, Kesari, S. and Maliski, S. (2017). “The Hidden Morbidity of Cancer: Burden in Caregivers of Patients with Brain Metastases”. Nursing Clinics, 52 (1), 159-178. https://doi.org/10.1016/j.cnur.2016.10.002
10. Lindstrom, B. and Koehler, L. (1991). “Youth, Disability and Quality of Life”. Pediatrician, 18 (2), 121-128.
11. Rha, S.Y, Park, Y, Song, S.K, Lee, C.E. and Lee, J. (2015). “Caregiving Burden and the Quality of Life of Family Caregivers of Cancer Patients: The Relationship and Correlates”. European Journal of Oncology Nursing, 19 (4), 376-382. https://doi.org/10.1016/j.ejon.2015.01.004
12. Zarit, S.H, Reever, K.E. and Back-Peterson, J. (1980). “Relatives of the Impaired Elderly: Correlates of Feelings of Burden”. Gerontologist, 20, 649-655.
13. İnci, F. ve Erdem, M. (2006). “Bakım Verme Yükü Ölçeği’nin Türkçe'ye Uyarlanmasi Geçerlilik ve Güvenilirliği”. Anadolu Hemşirelik ve Sağlık Bilimleri Dergisi, 11 (4), 85-95.
14. Weitzner, M.A, Jacobsen, P.B, Wagner, J.R, Friedland, J. and Cox, C, (1999). “The Caregiver Quality of Life Index-Cancer (CQOLC) Scale: Development and Validation of an Instrument to Measure Quality of Life of the Familiy Caregiver of Patients with Cancer”. Quality of Life Research, 8 (1), 55-63. https://doi.org/10.1023/A:1026407010614
15. Karabuğa, H. (2009). Kanserli Hastalara Bakım Verenlerin Yaşam Kalitesinin Değerlendirilmesi. Yüksek Lisans Tezi. Marmara Üniversitesi Sağlık Bilimleri Enstitüsü, İstanbul.
16. Budak, S. (2019). Palyatif Bakım Alan PEG (Perkütan Endoskopik Gastrostomi) ve NG (Nazogastrik)’li Hastalara Bakım Verenlerin Bakım Yükü ve Yaşam Kalitesinin İncelenmesi. Yüksek Lisans Tezi. Balıkesir Üniversitesi Sağlık Bilimleri Enstitüsü, Balıkesir.
17. Başdinç, Ş.E. (2019). Palyatif Bakımda Yatan Hasta Yakınlarının Bakım Verme Yükü ve Psikososyal Gereksinimleri. Yüksek Lisans Tezi. İstanbul Üniversitesi-Cerrahpaşa Lisansüstü Eğitim Enstitüsü, İstanbul.
18. Eğici, M, Can, M, Toprak, D, Öztürk, G, Esen, E. S, Özen, B. ve Sürekci, N. (2019). “Palyatif Bakım Merkezlerinde Tedavi Gören Hastalara Bakım Veren Bireylerin Bakım Yükleri ve Tükenmişlik Durumları”. Journal of Academic Research In Nursing, 5 (2), 123-131. https://doi.org/10.5222/jaren.2019.38247
19. Hudson, P.L, Remedios, C. and Thomas, K. (2010). “A Systematic Review of Psychosocial Interventions for Family Carers of Palliative Care Patients”. BMC Palliative Care, 9 (17), 1-6. https://doi.org/10.1186/1472-684X-9-17
20. Krug, K, Miksch, A, Klimm, F.P, Engeser, P. and Szecsenyi, J. (2016). “Correlation Between Patient Quality of Life in Palliative Care and Burden of Their Family Caregivers: A Perspective Observantional Cohort Study”. BMC Palliative Care, 15 (4), 1-8. https://doi.org/10.1186/s12904-016-0082-y
21. Limpawattana, P, Theeranut, A, Chindaprasirt, J, Sawanyawisuth, K. and Pimporm, J. (2013). “Caregivers Burden of Older Adults with Chronic Illnesses in the Community: A Cross-Sectional Study”. Journal of Community Health, 38 (1), 40-45. https://doi.org/10.1007/s10900-012-9576-6
22. Han, Y, Liu, Y, Zhang, X, Tam, W, Mao, J. and Lopez, V. (2017). “Chinese Family Caregivers of Stroke Survivors: Determinants of Caregiving Burden within the First Six Months”. Journal of Clinical Nursing, 26 (23-24), 4558-4566. https://doi.org/10.1111/jocn.13793
23. Tamayo, G.J, Broxson, A, Munsell, M. and Cohen, M.Z. (2010). “Caring for the Caregiver”. Oncology Nursing Forum, 37 (1), E50–E57. https://doi.org/10.1188/10.ONF.E50-E57
24. Van Der Eerden, M, Csikos, A, Busa, C, Hughes, S, Rodbruch, L, Menten, J, Hasselaar, J. and Groot, M. (2014). “Experiences of Patients, Family and Professional Caregivers with Integrated Palliative Care in Europe: Protocol for an International, Multicenter, Prospective, Mixed Method Study”. BMC Palliative Care, 13 (52), 1-9. https://doi.org/10.1186/1472-684X-13-52
25. Kim, H, Chong, M, Rose, K. and Kim, S. (2011). “Predictors of Caregiver Burden in Caregivers of Inviduals with Dementia”. Journal of Advanced Nursing, 68 (4), 846-855. https://doi.org/10.1111/j.1365-2648.2011.05787.x
26. Adelman, R.D, Tmanova, L.L, Delgado, D, Dion, S. and Lachs, M.S. (2014). Caregiver Burden: a Clinical Review”. The Journal of the American Medical Association, 311 (10), 1052-1060. doi:10.1001/jama.2014.304
27. Mcllfatrick, S, Doherty, L.C, Murphy, M, Dixon, L, Donnelly, P, McDonald, K. and Fitzsimons, D. (2017). ‘The Importance of Planning for the Future’: Burden and Unmet Needs of Caregivers’ in Advanced Heart Failure: A Mixed Method Study”. Journal of Palliative Medicine, 32 (4), 881-890. https://doi.org/10.1177/0269216317743958
28. Dirikkan, F, Baysan Arabacı, L. ve Mutlu, E. (2018). “The Caregiver Burden and the Psychosocial Adjustment of Caregivers of Cardiac Failure Patients”, Türk Kardiyoloji Derneği Arşivi, 46 (8), 692-701. https://doi.org/10.5543/tkda.2018.10.5543/tkda.2018.69057
29. Iconomou, G, Vagenakis, A.G. and Kalofonos, H.P. (2001). “The İnformational Needs, Satisfaction with Communication, and Psychological Status of Primary Caregivers of Cancer Patients Receiving Chemotherapy”. Supportive Care in Cancer, 9 (8), 591-596. https://doi.org/10.1007/s005200100259
30. Diehl- Schmid, J, Schmidt, E.M, Nunnemann, S, Riedl, L, Kurz, A, Förstl, H, Wagenpfeil, S. and Cramer, B. (2013). “Caregiver Burden and Needs in Frontotemporal Dementia”. Journal of Geriatric Psychiatry, 26 (4), 221-229. https://doi.org/10.1177/0891988713498467
31. Gott, M, Allen, R, Moeke-Maxwell, T, Gardiner, C. and Robinson, J. (2015). “No Matter What the Cost’: A Qualitative Study of the Financial Costs Faced by Family and Whānau Caregivers Within A Palliative Care Context”. Palliative Medicine, 29 (6), 518-528. https://doi.org/10.1177/0269216315569337
32. Ganapathy, V, Graham, G.D, Di Bonaventura, M.D, Gillard, P.J, Goren, A. and Zorowitz, R.C. (2015). “Caregiver Burden, Productivity Loss, and Indirect Costsassociated with Caring for Patients with Poststroke Spasticity”. Clinical Interventionsin Aging, 10, 1793-1802. https://doi.org/10.2147/CIA.S91123
33. Yu, Y, Hu, J, Efird, J.T. and McCoy, T.P. (2013). “Social Support, Coping Strategies and Health-Related Quality of Life Among Primary Caregivers of Stroke Survivors in China”. Journal of Clinical Nursing, 22 (15-16), 2160-2171. https://doi.org/10.1111/jocn.12251
34. Yildirim, S, Engin, E. ve Baskaya, V. A. (2013). “İnmeli Hastalara Bakim Verenlerin Yükü ve Yükü Etkileyen Faktörler”. Nöro-psikiyatri Arsivi, 50 (2), 169. https://doi.org/10.4274/npa.y6505
35. Song, J.I, Shin, D.W, Choi, J.Y, Kong, J, Baik, J.Y, Mo, H, Park, M.H, Choi, S.E, Kwak, J.H. and Kim, J.E. (2011). “Quality of Life and Mental Health in Family Caregivers of Patient with Terminal Cancer”. Support Care Cancer, 19, 1519-1526. https://doi.org/10.1007/s00520-010-0977-8
36. Kroenke, C.H, Kwan, M.L, Neugut, A.I, Ergas, I.J, Wright, J.D, Caan, B.J, Hershman, D. and Kushi, L.H. (2013). “Social Networks, Social Support Mechanisms, and Quality of Life After Breast Cancer Diagnosis”. Breast Cancer Research and Treatment, 139 (2), 515-527. https://doi.org/10.1007/s10549-013-2477-2
37. Bahadır Yılmaz, A. ve Ata, E.E. (2017). “Nörolojik Hastalığı Olan Bireylerin Bakım Vericilerinin Bakım Veren Yükü ile Stresle Başa Çıkma Biçimleri Arasındaki İlişkinin Belirlenmesi”. Psikiyatri Hemşireliği Dergisi- Journal of Psychiatric Nursing, 8 (3), 145-149. https://doi.org/10.14744/phd.2017.77699
38. Sit, J.W, Wong, T.K, Clinton, M, Li, L.S. and Fong, Y.M. (2004). “Stroke Care in The Home: The Impact of Social Support on the General Health of Family Caregivers”. Journal of Clinical Nursing, 13 (7), 816-824. https://doi.org/10.1111/j.1365-2702.2004.00943.x
39. Jafari, H, Ebrahimi, A, Aghaei, A. and Khatony, A. (2018). “The Relationship Between Care Burden And Quality of Life in Caregivers of Hemodialysis Patients”, BMC Nephrology, 19 (1), 1-8. https://doi.org/10.1186/s12882-018-1120-1
40. Hung, J.W, Huang, Y.C, Chen, J.H, Liao, L.N, Lin, C.J, Chuo, C.Y. and Chang, K.C. (2012). “Factors Associated with Strain in Informal Caregivers of Stroke Patients”. Chang Gung Medical Journal, 35 (5), 392-401.

Toplam 40 adet kaynakça vardır.

Ayrıntılar

Birincil Dil	Türkçe
Konular	Sağlık Kurumları Yönetimi
Bölüm	Araştırma Makaleleri
Yazarlar	Hülya Bulut 0000-0003-0086-6181 Canan Bozkurt 0000-0001-8034-4062 Derya Demirkol Sakar 0000-0003-1158-6177
Yayımlanma Tarihi	26 Eylül 2023
Yayımlandığı Sayı	Yıl 2023 Cilt: 12 Sayı: 3

Kaynak Göster

APA	Bulut, H., Bozkurt, C., & Demirkol Sakar, D. (2023). Palyatif Bakım Hastalarına Bakım Veren Bireylerin Bakım Yüklerinin Yaşam Kaliteleri Üzerine Etkisi. Gümüşhane Üniversitesi Sağlık Bilimleri Dergisi, 12(3), 1086-1096. https://doi.org/10.37989/gumussagbil.1225687
AMA	Bulut H, Bozkurt C, Demirkol Sakar D. Palyatif Bakım Hastalarına Bakım Veren Bireylerin Bakım Yüklerinin Yaşam Kaliteleri Üzerine Etkisi. Gümüşhane Üniversitesi Sağlık Bilimleri Dergisi. Eylül 2023;12(3):1086-1096. doi:10.37989/gumussagbil.1225687
Chicago	Bulut, Hülya, Canan Bozkurt, ve Derya Demirkol Sakar. “Palyatif Bakım Hastalarına Bakım Veren Bireylerin Bakım Yüklerinin Yaşam Kaliteleri Üzerine Etkisi”. Gümüşhane Üniversitesi Sağlık Bilimleri Dergisi 12, sy. 3 (Eylül 2023): 1086-96. https://doi.org/10.37989/gumussagbil.1225687.
EndNote	Bulut H, Bozkurt C, Demirkol Sakar D (01 Eylül 2023) Palyatif Bakım Hastalarına Bakım Veren Bireylerin Bakım Yüklerinin Yaşam Kaliteleri Üzerine Etkisi. Gümüşhane Üniversitesi Sağlık Bilimleri Dergisi 12 3 1086–1096.
IEEE	H. Bulut, C. Bozkurt, ve D. Demirkol Sakar, “Palyatif Bakım Hastalarına Bakım Veren Bireylerin Bakım Yüklerinin Yaşam Kaliteleri Üzerine Etkisi”, Gümüşhane Üniversitesi Sağlık Bilimleri Dergisi, c. 12, sy. 3, ss. 1086–1096, 2023, doi: 10.37989/gumussagbil.1225687.
ISNAD	Bulut, Hülya vd. “Palyatif Bakım Hastalarına Bakım Veren Bireylerin Bakım Yüklerinin Yaşam Kaliteleri Üzerine Etkisi”. Gümüşhane Üniversitesi Sağlık Bilimleri Dergisi 12/3 (Eylül 2023), 1086-1096. https://doi.org/10.37989/gumussagbil.1225687.
JAMA	Bulut H, Bozkurt C, Demirkol Sakar D. Palyatif Bakım Hastalarına Bakım Veren Bireylerin Bakım Yüklerinin Yaşam Kaliteleri Üzerine Etkisi. Gümüşhane Üniversitesi Sağlık Bilimleri Dergisi. 2023;12:1086–1096.
MLA	Bulut, Hülya vd. “Palyatif Bakım Hastalarına Bakım Veren Bireylerin Bakım Yüklerinin Yaşam Kaliteleri Üzerine Etkisi”. Gümüşhane Üniversitesi Sağlık Bilimleri Dergisi, c. 12, sy. 3, 2023, ss. 1086-9, doi:10.37989/gumussagbil.1225687.
Vancouver	Bulut H, Bozkurt C, Demirkol Sakar D. Palyatif Bakım Hastalarına Bakım Veren Bireylerin Bakım Yüklerinin Yaşam Kaliteleri Üzerine Etkisi. Gümüşhane Üniversitesi Sağlık Bilimleri Dergisi. 2023;12(3):1086-9.

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